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Neurosarcoidosis Symptoms

You may be wondering if you are experiencing

Neurosarcoidosis Symptoms

because of what you are suddenly experiencing. Neurosardoisos also referred to as sarcoidosis of the nervous system, is a complication of sarcoidosis in which there is inflammation in the brain, spinal cord and other nervous system areas.

Sarcoidosis is a disorder of long-term (chronic) that affects many parts of the body, especially the lungs. In a small number of patients, the disease involves any part of the nervous system, which is called neurosarcoidosis.

It is possible that neurosarcoidosis can affect the nervous system and is not specific to any one part. Sudden facial weakness ( facial paralysis ) is the most common neurological symptoms and involves the nerves of the muscles of the face (cranial nerve VII). Any nerve in the skull can be affected, including the nerves that control eye and the taste, smell or hearing.

With neurosardosis the parts of the brain involved in regulating many body functions such as sleep, stress responses and temperature.

What also may occur muscle weakness or sensory loss nerve involvement peripherals . Other areas of the brain including the pituitary gland at the base of the brain or spinal cord may also be affected.

Neurosarcoidosis Symptoms

The commitment of the pituitary gland can cause:

  • Changes in menstrual periods
  • Excessive tiredness (fatigue)
  • Excessive thirst
  • High urine output

The symptoms vary.  Any part of the nervous system is affected.  Involvement of the brain or cranial nerves can cause:

  • Confusion , disorientation
  • Decreased hearing
  • Dementia
  • Delirium
  • Dizziness or vertigo (abnormal sensation of movement)
  • Double vision or other vision problems
  • Facial paralysis (weakness, drooping)
  • Headache
  • Loss of sense of smell
  • Loss of sense of taste,  abnormal taste
  • Psychiatric disorders
  • Seizures
  • Speech disturbances

Involvement of one or more nerves peripheral can lead to:

  • Abnormal sensations in any body part
  • Loss of movement of any body part
  • Loss of sensation in any body part
  • Weakness of any body part
  • Signs and tests

An exam may show problems with one or more nerves.

A history of sarcoidosis followed by neurological symptoms strongly suggest the presence of neurosarcoidosis. However, the symptoms of this condition can mimic other disorders, including diabetes insipidus, hypopituitarism , optic neuritis , meningitis and certain tumors.

Blood tests are not helpful in this condition.  A lumbar puncture may show signs of inflammation and can be found high levels of angiotensin converting enzyme in the blood or cerebrospinal fluid (CSF).  Unfortunately this test is not considered the most reliable but the results will be one of many to diagnosis this condition.

A chest x-ray often reveals signs of sarcoidosis of the lungs and a nerve biopsy of affected nerve tissue confirms the disorder.


At this time there is no known cure for either sarcoidosis or neurosarcoidosis, but the symptoms can be treated.  If symptoms are severe, progressive treatment will reduce the symptoms.

Your doctor may prescribe corticosteroids such as prednisone to reduce inflammation or if it is a specific area then injections may be an option.  Often prescribed until symptoms improve or disappear and may need to take them for months or even years.

Other medications may include hormone therapy and drugs that suppress the immune system.

If you have numbness, weakness, impaired vision or hearing or other due to damaged nerves in the head, you may need physical therapy, braces, a cane or walker.

Psychiatric disorders or dementia may require medication for depression, safety interventions and help with care.


Some cases spontaneously disappear within 4 to 6 months. Other cases continue intermittently for the rest of the life of the person.  Neurosarcoidosis can cause permanent disability and, in some cases, death.


Complications vary depending on the part of the nervous system is involved and how you respond to treatment. The slow deterioration or permanent loss of neurological function is possible.  In rare cases, the brainstem may be involved.  In this instance, neurosarcodosis can be fatal.

Call your doctor if you have sarcoidosis and any neurologic symptoms.  If you have a sudden loss of sensation, movement or body function go to the emergency room right away.


Aggressive treatment of sarcoidosis disables the body’s faulty immune response before nerve damage occurs. This can reduce the possibility of neurological symptoms.

The neurosarcoidosis symptoms mimic so many other illness or is often misdiagnosed.  You can also check here to see if you are at risk.  If you suspect you have this disorder, testing and immediate treatment are important to stop the symptoms from progressing any further.  If you have a doctor that tells you that you are fine and it is all in your head, it is time to get another opinion since time is of the essence.